Dying Words: Talking Points for Mortals, by Susan E. Sheehan
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Dying Words: Talking Points for Mortals, by Susan E. Sheehan
Best Ebook Dying Words: Talking Points for Mortals, by Susan E. Sheehan
While poignant and wrenching, dying , like all of life, presents precious gifts to those who are willing and able to engage in its process. Nothing brings existential questions to the fore like impending death. As much as death leaves in its wake deep loss, dying itself can be an experience as vital as any other part of life: thinking gets focused, priorities are ordered and relationships gain clarity. Shards of light pierce the darkness. Dying Words is both the true story of one couple in the last 10 days of life and the impetus for talking points for other mortals. Each chapter both educates and illustrates a common aspect of end of life care and encourages patients and their loved ones to participate actively in the often intimidating health care system which threatens to engulf individuals. In spite of the nature of its focus, Dying Words is a book full of hope and promise.
Dying Words: Talking Points for Mortals, by Susan E. Sheehan- Amazon Sales Rank: #1831403 in Books
- Published on: 2015-03-20
- Original language: English
- Number of items: 1
- Dimensions: 8.00" h x .49" w x 5.00" l, .48 pounds
- Binding: Paperback
- 196 pages
About the Author Susan E. Sheehan LCSW, MPA, CT, ACHP-SW has advanced degrees and certification in public administration, systems theory and medical social work. Her work has been primarily with those at the end of life in the context of hospital, hospice and home health care. in this context she has cared for over 2,000 people and those who love them. Now, Susan has her own business as an in-home social work consultant. She is driven by an abiding passion for supporting people in the pursuit of a Good Death which she does not consider an oxymoron or she would not waste all that passion. She has two lively dogs and two unleashed adult daughters.
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Most helpful customer reviews
3 of 3 people found the following review helpful. Must-read for all caregivers! By SV Beautifully written must-read for all caregivers fending for and protecting a loved one during their last days. From an expert in medical social work, Susan Sheehan demonstrates her knowledge, strong faith, and deep commitment to care for her dying husband while battling hospital bureaucracy and protocols. She navigates us through the foreign landscape of medical terminology, through hospice and hospital habitats, and through her unique perspective as a loving wife, medical social worker and mother. We witness this frank tale of breathtaking love and regret through her eyes as she strives to relieve the pain and suffering of her husband alone. Though she is buttressed by family and friends, she prefers to spend last moments with her husband privately, savoring each heartbreaking moment with his presence, and then offering it up to us as a final gift of love and loss.
2 of 2 people found the following review helpful. Helpful and enjoyable By Tim Yoder Losing a loved one is emotionally stressful (to say the least) even if it doesn’t involve navigating the US Healthcare system. Unfortunately, it often does, and I wouldn’t be able to anticipate, let alone prepare for, the complications surrounding end of life care. This book gave me the opportunity to do that. This author has both the professional and personal experience to make recommendations that are well informed and sympathetic. The book’s talking points encouraged me to consider and implement possible solutions and supports to sustain me when I have a dying family member. I don’t generally like thinking about these sorts of things, so her words are all the more valuable; they gently moved me towards these important conversations. In addition to that the book is thoroughly enjoyable. I found myself chuckling at times and tearing up quite bit at others, as if it were a novel. It is rare to find that a book that is both something I should read and something I will enjoy reading, but Dying Words fits that description.
1 of 1 people found the following review helpful. Entering the Promised Land: Navigating Medical Barriers to Dying Well By KJ After taxes, the most certain thing in life is death and, short of that, dealing with the American health care system. Susan Sheehan’s book Dying Words, Talking Points for Mortals, takes on a subject most of us ignore. How do we go through death’s door with our loved ones? How do we navigate though the heath care system choices for a serious disease or condition – consistent with the wishes of patients and loved ones who may not want the patient to live at all costs. How do we die well?Sheehan tells the story from the perspective of a social worker hospice professional who is her husband’s (Dennis's) co-pilot through his last 10 days. Put aside the heavy subject matter, I could not put the book down. It is a compelling page-turner, and not just for those of us now entering our own life fourth quarters. We meet the Other Wife, the anonymous everywoman with whom Sheehan shares her health care deliberations and choices but who, unlike Sheehan, does not have the slightest clue how to navigate physicians, nurses and the health care system’s nuances (and even politics) that all affect the type of health care being delivered.Dennis has an incurable disease. In his last three years (he dies at age 52), the pain he experiences hour by hour goes from bad to intolerable. After a premature stay in a hospice, Dennis goes home but finally goes back to the hospital when Sheehan and he believe the end is near and Sheehan’s overriding objective is have him exit life with as little pain as humanly and medically possible. Nothing works.In Dennis’s last 10 days, the Sheehans navigate between well-meaning professionals with conflicting objectives of keeping Dennis breathing for as long as possible or facilitating a life-exit with less pain than his unrelenting, unbearable anguish. With full power of attorney and a DNR, Susan’s only wish is to ease his pain. But she runs into a medical ethics inquiry in which some physicians basically accuse her of seeking medically-assisted suicide.For the Other Wife and the rest of us, there are important lessons here. Understand your loved one’s disease. Understand his/her end of life wishes. Ask the hard questions – e.g. do you want to be intubated so that you can breathe with assistance or do you draw the line so that you can slip away with your dignity? Do you have friends and community around you so deal with what comes next, in Sheehan’s case widowhood?Susan’s and Dennis’s paths crossed ours some years ago but we did not know them well. After reading this story, which is in part a love story of their marriage & life, I wish we had known them so much better. There are uncanny parallels to our own lives and perhaps yours too (the book emphasizes their faith without being preachy). It also turns out that Dennis was a Springsteen junkie just like I am and that we both were into the last days of Johnny Cash (it’s not in the book, but Dennis’s wake featured his favorite Springsteen songs).After each encounter or medical decision, Sheehan provides a list of questions for the Other Wife and us. How would you deal with X medical choice? What if the health care profession does not understand your objectives? How do you navigate medical complexity through tears and impending grief? These are the practical questions that all of us will confront sooner or later. Dying Words, Talking Points for Mortals is a gripping read. Chuck Jackson
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